Facebook’s Deceptive Privacy Policies

facebookA few weeks ago, the online world became enraged when Facebook launched its Instant Personalization” feature.  Users were automatically opted into the program without being notified and the only way to opt out was to:

  1. Know that this program had launched, it was done very quietly and
  2. Navigate through 3-4 mouse clicks on your account profile to find out where to disable the control.

Users were surprised and fears of “big brother” quickly surfaced when they would go to  their favorite news or media websites and see “Your Facebook friend liked this story!”  Or, “122 of your friends like this page, maybe you should fan it as well?”

Pretty intrusive, yes.  Also, if you are in the know, you know that when Facebook shares its data with 3rd parties it shares a lot more data about you than most people think they do.  All of your personal, private, data and statistical information is now in the hands of  a third-party; a third-party that may or may not protect your data.  That may or may not sell it to others.

Yes – we were all opted into this without being asked.

Now here’s the rub.  I OPTED OUT of instant personalization on Facebook and I am still getting personalized messages.   Even though I opted out, my personal information is STILL being shared with third parties.  That is blatant deception on Facebook’s part and certainly cause for a legal dispute.

Look for yourself – both of these screen shots were taken this morning.  Click the image for a larger view:

CNN.COM MAy 26th, 2010

CNN - notice the personalization block on the right.

Facebook Personalization Settings

Facebook Settings - notice I have "checked" (opted) out of the program.

As you can CLEARLY see, my opt out of the personalization program means nothing to Facebook.  They are still sharing my data with CNN. I’m not saying you should quit Facebook as many others are advocating.  Facebook has its uses, but you need to be wary of what you out there; you never know who will get access to or where your personal data will end up.

the-miscarriage

We Lost The Baby

I have very sad news to impart.  Carey and I have lost the baby.

Let me start from the beginning . . . and it’s better (easier), for me, to be in the third person as I write this because my heart is so heavy right now. . .

He was in Washington, DC on business when Carey called.  His plane had just landed.  She was spotting, but it was the same day she was supposed to have had her period were she not pregnant.  Their doctor, and plenty of their friends, had told them that many women have mini-periods like this even when pregnant; so he wasn’t unduly concerned.  Still, he encouraged her to call her doctors and let them know about this spotting.  She readily agreed; this baby was too important to let any variable go unrecognized.

Their doctor agreed that it was probably normal, but asked Carey to come in for an ultrasound anyway; just to be sure.  He felt terrible that he wasn’t there.  When they had found out that they were pregnant, just a few short weeks ago, he had looked her in the eye and promised her that she would never be alone through this.  He had gently grasped her hand and kissed her lips, whispering that this was their baby, together, and that he would never leave her side.

And so he was devastated that he wasn’t there to help her, but he agreed that she needed to get the ultrasound.  He was heartbroken that his promise was already put to the test and found wanting.  He stood in the airport as she told him that the doctor had asked her to immediately come in for a checkup, resentfully watching planes carry people to their destinations; angrily cursing the twist of fate that had taken him almost a thousand miles from his love on the one day that he needed to be with her.

He sucked up his angst and supported her.  He had only one request; that she would not look at the pictures of the ultrasound.  He wanted to be there, with her, when they saw the baby for the first time.  It didn’t matter that the view of the baby at 6 1/2 weeks was nothing spectacular – it would be the first time they saw their baby.  It had to be a view seen together.  She agreed.

He reluctantly hung up his phone and rode the subway to his destination, waiting expectantly for news from his wife.  He desperately wanted to be with her and was so anxious about the news and results of her checkup.  He didn’t remember the subway ride or his first hour at the DC office; he was so wrapped in his thoughts and worry about her.

The call came a couple of hour later.  she happily informed him that  she was fine.  The baby was fine; the heartbeat was a little low, but nothing to be concerned about at the moment.  The doctors had scheduled another ultrasound a week later just to follow-up – and he would be back in town for this checkup.

She had the ultrasound pictures locked in a sealed envelope and she hadn’t seen them yet.  He grinned in relief and could hear the answering smile in her voice as she told him how much she loved him and promised to Skype him later in his hotel room.  That evening, he was so excited to see his baby that he asked her to open the envelope and show him via webcam what their baby looked like.  It was a bittersweet moment; he was so happy to see his little bean for the first time but was sad, and still heartbroken, that he wasn’t there to hold his wife.

The week passed, as they inevitably do, and soon enough he was back in Orlando and they were ready to go to the doctor again for her checkup.   He always got a kick out of the pregnant ladies waddling around the office and today was no exception.  In good spirits, they were led back to the ultrasound room and the technician began the ultrasound.

It started normally enough.  The baby was quickly spotted, but then the abnormalities immediately became clear.  The baby hadn’t grown in a week; it was the same size that it had been the week earlier.  After five minutes of searching, the technician had to conclude that she couldn’t definitively find a heartbeat either.  There had been a couple of views that looked like they could be a heartbeat, but it should have been much more prominent than it was.

As the ultrasound continued, Carey grabbed his hand and squeezed.  The technician did a good job of putting their fears at ease, implying that this might not be bad.  It was a straw they eagerly grasped.  His heart was pounding in his chest, almost as if it were willing to beat for the baby as well as for himself.  With fear and uncertainty, Carey dressed and they were led to a waiting area separate from the “general population.”  He didn’t fail to recognize that this was a bad sign – the staff had procedures for dealing with abnormalities and one of them was to make sure that the distraught parents weren’t around others where they could infectiously spread their anxiety.

Eventually they were led back to the doctor’s office, where she immediately placed her hand on Carey’s leg and offered her her condolences.  The doctor very clinically informed them that this was not their fault.  They had done nothing wrong.  Sometimes pregnancies don’t take.  The first trimester is a critical time and if there is even one variable not right in the womb, egg, or sperm, the body will stop the pregnancy.  It hadn’t quite sunk in yet; he was watching the doctor’s mouth move, but the words hadn’t really registered.

He heard a sound.  Carey had dropped her pocketbook and was quietly crying, the tears streaming down her face.  Immediate guilt surged in him; he had been so busy trying to understand what the doctor was telling them that he hadn’t noticed Carey’s deteriorating emotional state.  He stood quickly and wrapped his arms around her, feeling numb inside as his protective instinct kicked in.  He had to help her – she was his priority.

The doctor said she was 90% positive that the pregnancy was ending, but there was still some very faint hope that it could recover.  Come back in another week and, if the pregnancy was really over, they would discuss options on how to truly end it.

They drove home in silence, his hand in hers as he maneuvered through traffic, and quiet tears rolling don her face the entire time.  When they got home, she broke down.  She sobbed in his arms.  He cried with her, but not very much; she needed him to be strong.  He needed to be there for her.  As a problem solver, his first (male) instinct was to tell her that they could still have a baby – just not this baby.  He wanted to enumerate their options and plan for the next week – making plans made him feel better, but he knew instinctively that they would not make her feel better.  So he didn’t say anything; he just held her and told her how much he loved her.  He kissed the tears on her cheeks as she cried and mourned internally as she cried for the both of them.

The Sadness is overwhelming

The Sadness is overwhelming

The next few days were difficult.  Extremely.  Both of them went through the gamut of emotions one normally goes through when confronted with a sudden and unexpected loss.  He was amazed at how much this was hurting him.  People have miscarriages all the time; it seemed like a thing that just happened to people and they moved on.  He hadn’t realized how much he had attached himself to his unborn baby and how much love he already had for it.  He was, literally, mourning the loss of a child.  A child he had never met, but his child.

Carey was even worse.  She had felt her body change as her pregnancy commenced. She had looked at her belly in the mirror every day.  She had suffered from the morning sickness.  She had bought maternity clothes.  She had registered for childbirth classes, breastfeeding classes, and had bonded with other pregnant women she knew.  She had invested everything she was into her baby and her grief was so sharp and immense as a result.

They had to tell the children.  That was hard; all three children grieved with them.  He was surprised at how much they children were hurt by the loss of the baby, but he shouldn’t have been.  All three of his kids were loving, empathetic, and had embraced their new brother/sister.

To make matters worse, babies were everywhere.  On television, at the office, family members, at the mall.  They couldn’t escape baby fever, spring fever, that was everywhere.  He started getting resentful of other people who had babies, and then felt immediately guilty for it.  He surprised himself at Publix when he was shopping.  He unconsciously walked through the baby aisle and when he realized where he was, he felt a lump form in his throat and he had to quickly move to the next aisle.

And every evening, they lay in bed together and he wrapped his arms around her as she cried.

A long, agonizing, week passed.  They had slowly come to grips that the pregnancy was over.  They were ready to put it behind them and move on, but it was hard.  When the womb becomes a tomb it affects everything in a couple’s life.  A final ultrasound confirmed what they knew; the baby was gone and all that remained was a mass of dead tissue taking up real estate in her uterus.   They were much more stoic and reserved when they met the doctor again.  They had lost some vital part of them selves.  They had been tempered by grief and loss and just wanted to move on.

But it wasn’t so easy.  The dead fetus wasn’t moving out of her system.  The doctor told them that it would eventually take care of itself, but the thought of waiting for a miscarriage, knowing that the baby was dead, was intolerable.  And so, she opted for a D&C later the same week.  They would forcibly go in and remove the dead tissue.

The next few days were a little better for him.  They had a plan.  He liked plans.

Finally, Friday (today) arrived.  They woke early, drove the kids to school, and went to Winnie Palmer Hospital for the D & C.

He was filled with conflicted emotions as she was prepped for surgery.  His heart broke when he saw her in a hospital bed, wearing a hospital gown, and with an IV in her arm.  For the first time he had some inkling of what Carey when through when he was in the hospital for his cancer treatments.  He hadn’t realized how hard, painful, and heartbreaking it was to see someone you loved so much in a hospital bed.  Of course, he joked his way through his emotions and got an honest bark of laughter as he watched Carey’s reaction to the versed, the relaxant they give you just before surgery (she started giggling uncontrollably).

He felt a pang as she was wheeled back to the operating room and then endured two hours of anxiety as he waited for the doctor to tell him she was OK and that he could see her.  Finally, he was allowed to see her.  She had come through the procedure just fine and was waking up.  He eagerly went to her recovery room.

She looked at him, and with immense sadness, said she felt like something was missing.  And then she started crying.  All he could do was hold her and stroke her hair.  The doctor had told him, before she had let  him back to see Carey, that she would definitely feel emotional.  She went into surgery pregnant, even if the baby was dead, and she came out not pregnant.  Her body would know.  Her hormones were suddenly and drastically different and her emotional state would be affected.  She would feel the loss of the baby.

And she did feel the loss.  His heart broke again, but his love for her swelled to new heights.  This was his wife; the woman he loved more than anyone else in the world – a love equaled only by the love he felt for his children.  She was so beautiful and so strong.  Through tears she looked up at him and whispered, “I love you.”  He nodded and stroked her head, not trusting himself to speak.

Eventually she was released and they drove home.  She was tired, sore, and the pain meds hadn’t worn off, but she smiled, grabbed his hand, and looked him in the eye and said, “We’re going to try again as soon as I am better.  We’re going to have our baby.”

And he believed her.

Sometimes you despise a person

Sometimes you despise a person.  Yes, I said the word “despise.”  It’s usually limited to people who once held your trust and respect.  For some reason or another, though, they lost that trust and respect.  And not just by letting you down, but by betraying you in a most humiliating and spectacular fashion.  For abusing you time and time again.  For breaking massive promises and divulging damaging secrets.  For hurting you so badly that the wound seeps and oozes for a long time after the initial cut.

There are people you dislike, on general principles; and then there are people who you despise. As I said, you can only despise people who you know closely unless their actions are so heinous that they reflect on a global stage.  So usually it’s a best friend, a relative, a lover, a spouse, or even a child of yours – unless it’s Hitler, a child molester, a mass murderer, or some other disgraced and repugnant world figure.

When it’s someone who was once close to you, and old, dear, friend, you can’t hide the fact that you despise that person.  You can try.  To keep the peace.  To make things easier.  Especially if, for some reason, you are forced to have regular contact with the person you used to respect and trust.  This happens at work most often or in social circles where you mingle with ex-coworkers.

It always comes out, though, that you despise them.  In every interaction.  In every sentence spoken.  In every email sent.  An undercurrent of distaste and malice permeates every interaction.  No matter how hard you try it always comes out.  So, in order to keep the peace, you make excuses for it – to keep the peace.

“I’m having a bad day.”

“I wasn’t really paying attention; sorry – the other phone was ringing.”

“I can’t really talk right now; my toes are on fire.”

You make up wild, and stupid, excuses to avoid contact, or to mitigate the obvious fact that you despise that person.

And it works.  People are so vain that they can’t conceive that someone actually despises them.  So they label you as an “Asshole/bitch,” or as “forgetful,” or as “absent-minded” and chide you for what they perceive to be your failings.  Thus exacerbating the situation and increasing the negative emotions between the two of you, because YOU know that they are only able to chide you because you are trying to keep the peace.

You begin to suffer anxiety about interactions with that person.  Things you might say, or could have said, dominate your thoughts.  Your very health is affected and, indeed, your relationships with other people are affected.  You form a pattern of behavior that you can’t just turn off when you start talking to other people – people who you don’t despise.

To despise someone is not easy and a heavy price is paid for it.

Why am I blogging about this?  Am I talking about myself?  No – not really.  I don’t hate or despise anyone who doesn’t know it.  At least, if I do, I’m not going to tell you (the masses) that!  🙂  This is just “profound” insight I’ve been pondering this week as I watch other people interact.

It’s amazing, though, how complex social interactions  become when one person despises another and tries to hide it.

Head and Neck Cancer Radiation Treatments Can Cause Hypothyroidism

I have been diagnosed with hypothyroidism

I have been diagnosed with hypothyroidism

I have just been diagnosed with a condition called hypothyroidism.

(Related: 9 Things You Need to Know About Your Thyroid – Infographic )

Last week I went to my medical oncologist for my 3-month blood workup.  At the request of my radiation oncologist, he added a TSH test to the workup.  TSH stands for thyrotropin, a hormone produced in my pituitary glands that stimulates thyroid hormone production.

In essence, is your TSH levels are too high, it means that your thyroid isn’t making enough hormone to keep it under control.  This is the major indicator of hypothyroidism.

You can guess what happened next.  And you’d be right.  I received a call back from my oncologist today telling me that my TSH levels were high.

My radiation oncologist hinted to me two weeks ago that this condition was a very real possibility.  I underwent 35 radiation treatments to my neck area and my thyroid was bombarded by the radiation meant to kill my cancer.  Unlike the cartoons, this radiation didn’t turn me into a super-powered mutant.  In addition to killing my cancer, it permanently scarred the inside of my neck and damaged my thyroid.

So my doctor placed me on a hormone replacement pill that I have to take once a day.

For the rest of my life.

I am not really pleased with this turn of events.  I don’t like feeling tied to the pharmaceutical industry.  I have prided myself since I emerged from cancer treatment on not taking any medicines save the occasional Tylenol for headaches.  Now I am saddled with a pill-a-day for life.  That realization does something to me psychologically.

I used to be on blood pressure and diabetes medication, daily.  I kicked them to the curb, though, when I got my conditions under control.  I was able to adjust my lifestyle to make those medicines unnecessary and irrelevant.  I can’t do that with my thyroid medicine.  I will NEVER be able to change my behaviors or lifestyle in any useful way that will affect my thyroid hormone production.

An Extreme Case of Hypothyroidism

An Extreme Case of Hypothyroidism

It’s not all bad.  I was starting to show some of the effect of hypothyroidism.  I battle fatigue, really dry skin, difficulty losing weight even when I do all the right things, irritability.  These are all possible signs of hypothyroidism.  If I am lucky, these will diminish, if not disappear, as a result of my new daily pill regimen.

It’s good to catch it now, before it gets worse.  It’s manageable and should have no negative impact on my life in any way whatsoever (other than having to take a pill daily).  Left untreated, though, hypothyroidism can be very dangerous and disfiguring, as you can see from the image on the left.

I’ll deal with it like I have every other challenge to come my way.   It won’t keep me down, but I was a bit disappointed to hear the news.

I’m not sure what I am trying to say other than . . . bummer.

puke

He Said: Is She Using Her Pregnancy to Get Out of Dirty Chores?

(note:  this whole blog is tongue-in-cheek and not meant to be taken seriously)

Everyone knows I am giddy with happiness.  My wife is pregnant and we’re going to have a baby.  I am ready and willing to help and assist in any way I can.  I have been waiting on my lovely wife hand and foot since we found out last week she is pregnant.

Still, I have to wonder how much of her lethargy and morning sickness is psychosomatic and not physiological.

Since she found out she is pregnant she is sleeping like a zillion hour s a day.  Don’t get me wrong, Carey has always been a power-sleeper, but now she has license to sleep and no guilt to go along with it.  It’s NAP ON for her now.

But that’s not what I am blogging about today.  Today I am blogging about a particular incident.  I have no doubts that Carey has a lot of morning sickness.  In the morning.  In the afternoon.  In the evening.  It’s almost constant for her.

So yesterday morning we woke up to find out our beagle, Cassie, had suffered from a bout of explosive diarrhea in her crate the night before.  Carey took one look at the mess and literally ran out the door, outside in the driveway, in her pajamas, and started making all sorts of god-awful gagging, dry-heaving, sounds.

She refused to come back in until I had cleaned the mess, mopped the floor, washed the crate, bathed the dog, and restored the house to its normal “smell.”  She stood in the driveway, hair all askew, in her Smurfette Underoos, and waited for me to clean the mess.

And she blames it on the baby.   I’m not finding it odd that she gagged and couldn’t handle the cleanup.  I’m just not sure it has anything to do with the pregnancy.  I think she now has a reason to justify her weak stomach!

Her excuse now trumps whatever excuse I can come up with so I am forced to do all the dirty work she doesn’t want to do!  All she has to do is blame it on the baby and I am pretty much stuck.  How do you top that?

It’s not fair, I say!

We’re Having a Baby!

The pee sticks don't lie!

The pee sticks don't lie!

I am so overwhelmed with emotion that I don’t know where to begin. Excitement, nervousness, fear, giddiness, love, and happiness. Let me start from the beginning.

I am so happy I can’t contain myself.

After my cancer treatments, I was told that the drug that was used on me in chemotherapy almost certainly negatively impacted my fertility.  I never stopped to think that “negatively impacted” does not means “infertile.”

Turns out that I am not infertile!

Three weeks ago, Carey and I rode to Daytona’s 2010 Bike Week. We had a great time with friends, but I noticed that Carey wasn’t feeling very well on and off throughout the day. She was nauseous and just a little under the weather. She didn’t even want to share a beer with us as we walked and rode through the festivities at Daytona. We chalked it up to just a random stomach bug.

It seemed to get better for a week or so, but then last week, when we were at my nieces’ baby shower she started feeling really, really sick. We enjoyed the shower, of course, but I was worried about Carey’s near-constant nausea and upset stomach.

Strangely enough, I chose that week to blog about my views on abortion. Maybe I subconsciously suspected that Carey was pregnant. Of course, the fact that as we drove home from the baby shower every other billboard for 100 miles on I-95 from Jacksonville to Daytona were anti-abortion ads may have been a factor.

Last week, the sickness didn’t get better and Carey started feeling poorly off and on at all hours of the day.  On March 24th, 2010 – two days before my birthday – I went to Walgreens and picked up a pregnancy test for Carey. I didn’t think she was pregnant, but the signs were starting to tickle my spider sense.

She went into the bathroom and peed on the stick. I hid it from her and watched it as the test progressed. After about a minute, a faint second line started coming in – indicating that she was pregnant.

My heart started pounding in my chest. But the second line was so faint! Maybe there was a mistake? I wasn’t sure if I wanted it to be a mistake or not.

Carey took another test an hour later. The second line immediately turned red.  (We have taken four tests over 3 days now, “just to make sure.”)  They all reach the same conclusion:

Carey is pregnant!

We laughed, we cried. We hugged each other tightly in the bedroom and whispered our love for each other softly to each other.  Based on our math, we think Carey is about six weeks pregnant right now with a mid-November due date.  We’ll know more accurately when we see a doctor next week.

I am 40 years old today and I’m going to have a baby in 8 months. I feel overwhelmed and not up for the task. mentally I’m ready. I’m a good dad and I love my children. My experience will make it so much easier now.

Physically I am not where I was when I was younger. Financially I’m still recovering from my disability and medical bills from my cancer treatments last year. This will definitely impact the recovery. I need to start getting everything on order for baby’s arrival.

More than anything, though, I love my wife. I love my unnamed baby. I call him/her “Ziggy the Zygote” for now, although Carey is not all that fond of my little nickname for Baby Sparks.

This is so amazing. We are so happy.  We’re having a baby!

Airport Scanners Violate My Rights

Airport Body Scanners Violate My Rights

Take a look at the image on the right. That, my friends, is what an airport full-body image scanner shows. You can clearly see every . . . single . . . inch of the person in the scanner.

  • His chest.
  • His navel.
  • His butt-crack.
  • His penis.
  • His testicles.

You can see it all.

This is what awaits you at the airport. I find it offensive and despicable. Airport full-body scans are just strip searches and I, as an American citizen, am supposed to be protected from unreasonable search.

The mere fact that I want to fly from point A to point B does not grant any agency, public or private, to strip search me without cause. Flying is not cause.

These machines are massive and intrusive invasions of privacy.

Authorities are quick to point out the necessity of these machines in a post-9/11 world. We should be happy to give up liberties for safety, they tell us. It’s not all that bad; they have measures in place to protect you and your identity in the scans.

They are lying to you, people.

  • They will tell you that the “viewer” of the scanner is alone in a private room.
  • They will tell you that the viewer is not allowed to have any recording devices in the room.
  • They will tell you that the viewer is guaranteed to be the same sex as you.

They tell you these things as if they should make a difference.  Aside from the fact that you really don’t KNOW if these statements are true or not and if they apply to every airport and every TSA agent, there is still less legal protection, MUCH less, of your personal and private information than you get from your health care professional.

Your privacy is is being needlessly invaded

HIPAA privacy law demands many protocols and controls over your personal health information.  Everything from who can see the data, to how long the data can be stored, to how it’s encrypted and protected in transit.  These are well-documented rules, regulations, and laws and violations are severely dealt with.

You have no such guarantee with the TSA and the full-body scanners.  The potential for misuse is huge.  In fact, it has already happened.  Yes – lewd comments and unauthorized personal copies of images from a full-body scanner was taken by a worker at Heathrow airport.  Think about that, people – these machines have been out for less than three months and already we have a documented violation.

Statistically, that means that there is a high degree of probability that this is just the tip of the iceberg.  This is already happening and you don’t know about it.  Even if strict, well-documented, and enforceable legal processes are enacted I will not submit to the full-body scan at an airport.

There is no reason, none whatsoever, to strip search me without cause.  Period.  It’s as simple as that.  It’s not about modesty.  It’s not about embarrassment.  It’s about my constitutional right to be free from unreasonable search and seizure.

My Fourth Amendment right to be free from unreasonable search is under attack with these machines.  What’s coming next is the government position that by choosing to fly I am implicitly consenting to the search.

You, all of you, should boycott these machines.  You should make your voices heard.  You have already given up so many of your rights for the illusion of safety.  These machines amount to a strip search and while they are voluntary now, they will be mandatory later.  The time to stop this madness is now.

As Benjamin Franklin said, “They who would give up an essential liberty for temporary security, deserve neither liberty or security.”

Abortion

Should Abortion Be Legal?

Should Abortion Be Legal?

I’ve been asked quite often how I feel about abortion.  Should a woman have a right to choose?  At what point does a fetus become a human and when is it morally acceptable to terminate a pregnancy?

I am inevitably asked because the person asking is looking for support for their position.  They are rarely pleased with my answer, because I never answer exactly as they would expect.  Pro-lifers, those who think abortion should be illegal, don’t completely understand my reasoning.  Pro-choicers, those who believe that a woman has the right to decide if she wants to carry the baby or not, are not satisfied with my answer either.

So where do I stand on abortion?  I think abortion should be illegal.

I’ll grant that cases where the baby is threatening the mother’s life that abortion should be allowed.  I’ll grant that victims of rape should be allowed to choose.

But you’re a liberal, people say to me all the time.  How can you oppose abortion and be a liberal?  It’s easy.  I sit on the line, politically, between libertarianism and liberalism.  The Libertarian in me believes that people should be free to do just about anything they please as long as they don’t infringe upon the liberties of another person.

Abortion is the ultimate infringement on another person’s rights.

It’s not a religious viewpoint.  I’m not playing that card.  I don’t know when consciousness begins.  I don’t know when a “soul” enters the body.  I don’t have a dog in that fight.  And because I can’t know when a zygote becomes a person, I have to err on the side of caution.  Many pro-lifers are not satisfied with that response because I refuse to weigh in on the religious implications.

I’m also a big proponent of personal responsibility.  When two people have sex, they know the risk.  Regardless of how much protection is used, you are risking pregnancy when you have sex.  You are responsible for the outcome and consequences of your choices.  Period.

There’s no doubt in my mind that adequate social programs don’t exist to help an young mother-to-be who might not want to keep a baby from an unplanned pregnancy. Ideally, we need social programs to assist and help parents who do not wish to keep a baby.  We need a better way to hold deadbeat dads accountable.  We need a better way to make sure babies are well cared for.

Regardless, though, the lack of said programs does not give us the right to kill a child. It just means we have to mobilize as a society and fix that issue.

Does a woman have the right to choose?  Yes.  And so does the man.  They can choose to not have sex.  Other than that, they must live with the choice they make.

The Binary Biker is Still Cancer-Free!

I am still cancer-free!

Let's celebrate. I am still cancer-free!

Short blog.  Yesterday I blogged about my 6-month CT/PET scan and the process steps it entails.  Today, less than 24-hours later, I have my results.  I called my nurse, Val, at about 10:00am and asked that she call me as soon as the scans were in.  Around 11:00am she called me back. My result?

NORMAL SCAN.  NO SIGNS OF CANCER!

I am so happy.  This marks 18 months of clean scans.  Thank you everyone for asking about me, caring enough to wish me luck and offer your prayers and well-wishes.  These scans are my reality now and your support has meant so much to me.

Now, let’s celebrate the fact that I am still cancer-free!

The Cancer Survivor CT/PET Scan Routine

The CT/PET machine that scanned me today.

The CT/PET machine that scanned me today.

Today marks 18 months since the end of my treatments for squamous cell carcinoma.  I celebrate every 6 months by getting a CT/PET scan to check for more cancer.  This is a routine that most cancer survivors are familiar with, but surprisingly few others understand.  This article is my attempt to explain the process to the uninitiated.

After a cancer patient completes treatment and is nominally cancer-free, there is always the danger and risk that the cancer is still there; just too small to be detected.  As early detection is the key to fighting cancer, your doctors will schedule bi-annual CT/PET scans to check for new malignancies.  For the first two years, these tests are usually scheduled every six months and typically yearly after the first two years.

Both CT and PET scans are used to generate three-dimensional images of the internal structures of your body.  When the CT/PET scan is completed, the 3D image is analyzed by a doctor who is familiar with your medial history.  Obviously, he is looking for a new growth.  We always hope he doesn’t find one.

My scans are scheduled 6 months in advance.  I know exactly what date I will be returning for my scans and I plan accordingly.  These machines are very busy – there are a lot of patients – so it is important to not miss your date.  Getting your scan is vital and to miss a scheduled scan is a huge risk.  Rescheduling is problematic as well – your oncologists tend to schedule THEIR follow-ups with you right after the scans, so you can review what action plan you need going forward.  Missing your scan and rescheduling it causes a daisy chain of rescheduling that can be very difficult to manage.

The night before a CT/PET scan, up until the scan itself, you can’t have any caffeine, food, alcohol, or nicotine.  You can probably imagine the anxiety leading up to this point.  If you’ve read my blogs, you know that I start getting nervous about 30 days out.  To live cancer free is a gift that one doesn’t appreciate until you have faced that demon and beaten it back.  You develop a strange ambivalence towards the entire scan process.  On the one hand, you are eager for it because you want the assurance that you are till cancer-free.  On the other hand, you are dreading it because you may find out that you have a recurrence.  This anxiety wreaks havoc on cancer survivors, and friends/caregivers need to recognize and understand this.

The nurse gives you an IV to prep for the radiactive solution that will be injected into you.  I'm always a bleeder.

The nurse gives you an IV to prep for the radioactive solution that will be injected into you. I’m always a bleeder.

Once you arrive at the imaging center, you are led back to a small room where your medical history is verified.  The nurse verified my type of cancer, the location, the number of chemo treatments I had, the length of my radiation treatments, the number and dates of biopsies and surgeries, as well as confirming that I had not had any other scans recently.  This is important; CT/PET scans are radioactive and for safety reasons you should only have so many per year.

The room is usually small, cozy, and has soft music playing in the background.  You are led to a recliner and a pillow is placed under your arm.  A tourniquet is wrapped around your arm and the nurse washes her hands and then tries to find a viable vein to insert an IV into.

In order for the CT/PET scan to work properly, a small amount of radioactive liquid needs to be injected into your body.  That is the purpose of the IV.  Today, in my case, it did not go as smoothly as I would like.  When I get stuck with a needle I tend to rather forcefully squirt plasma everywhere.  I warned the nurse that this was the case.  I always warn them.  They never listen.  They smile, assume that I am exaggerating, and obliviously stick me anyway.

So I had my camera ready; I knew what the outcome was going to be and as my Type AB+ blood spewed forcefully from my vein, I captured the moment digitally.  Truthfully, this nurse was quicker than the last one six months ago.  I only squirted a couple of teaspoons this time; last time I lost a lot more before she managed to get it under control.

After the IV is successfully administered, the nurse pushes through sterile saline to clear the IV and then performs a blood sugar test on you.  The radioactive liquid that comes next is in a sugary solution and will raise blood sugar levels accordingly.  If your fasting blood sugar is above 130-150 the nurses may postpone your scan until you have a more reasonable blood sugar level.

In my case, my fasting blood sugar was 110.  I was ready to go.  The nurse handed me an 8-ounce cup of “contrast.”  The contrast is a iodine-based solution that works its way through your bowels.  It is used by the CT scan to, as the name suggests, provide contrast in the scan.  It makes your intestines and bowels easier to see in the scan.  It tastes foul.  Many people gag and can barely tolerate it.  For me, it’s not that bad, a little chalky, and I take a deep breath and swallow it all in one massive gulp.  The downside of the contrast is that it induces diarrhea in many people; myself included.  To avoid social awkwardness, it is usually best to work from home after your scans so you can be close to the porcelain throne.

The nurse carefully injects the radioactive solution into my veins

The nurse carefully injects the radioactive solution into my veins

After I made the appropriate faces from drinking the contrast, the nurse left and returned with the radioactive liquid.  This liquid is not stored at the imaging center.  The imaging center sends a list of patients each day to the supplier and a daily delivery is made.  It is regulated and dangerous and there is never more than enough for the day’s patients at the center at any given time.  This is another reason why same-day rescheduling is frowned upon.  This stuff has a very short half-life and must be discarded immediately if not used – that costs a lot of money.

It is housed in a tungsten container, preventing the radiation from leaking out.  The nurse very carefully uses the IV line she placed in you previously to inject the solution.  It may feel cold as it goes into your body.  This is normal.

After the injection is complete, the nurse removes your IV, turns out all the lights, gives you a warm blanket and pillow, and instructs you to lie still for 90 minutes.  And they mean it.  You can’t talk.  You can’t read.  You can’t play on your phone.  You can’t move any more than is strictly necessary.  And they have a very good reason for this.

As the radiation goes through your body, is slowly saturates your entire bloodstream and consequently your organs and lymphatic system.  If you move too much, say your fingers for instance by playing on your cell phone, you will get an abnormally high concentration of radioactive liquid in your fingertips.  The reason these scans work as they do is because cancer cells are more “active” than regular cells and tend to use more blood – causing a concentration of radioactive blood that “lights up” the scan.  If you move too much, you risk concentrating blood and causing a false positive on your scan.  Even reading causes extra blood flow in your brain and needs to be avoided.

This is also why you are urged to not work out at least 24 hours before your scan.  Sore muscles that are healing themselves require more blood and run the risk of a false positive on the scan.

After the radioactive liquid is injected into you, you have to sit still, in the dark, for 90 minutes.  This is harder than it sounds.  90 minutes without reading a book, walking around, talking, or doing something is nearly intolerable.  If possible, try to nap or listen to an iPod.  You are encouraged to use the restroom as often as you need, as long as you don’t take too long doing it and come back quickly to your base resting state.

After 90 minutes, which feels like an eternity, the nurse returns and flips the lights back on and you are asked to drink another 8 ounces of contrast.  Then, you are led to the imaging room.  I have it pictured at the top of this article.

You can’t have any earrings or jewelry on for the scan.  In fact, even the zipper on your pants is not allowed.  I am always asked to pull my pants down below my knees since they are not scanning my lower legs).  You are then strapped onto the table, feet and arms so you can’t move, and the machine is aligned.

The rest is easy, as long as you don’t get a nose itch (remember, you can’t move).  The CT scan comes first followed by the PET scan.  The CT scan is over relatively quickly – about 5 minutes.  The PET scan takes about 25-30 minutes to complete.  The entire time you are not allowed to move, or even turn your head.  It is vital that you lie as still as possible and breathe normally.

If you are claustrophobic, you might experience some anxiety as your body moves through the scanner.  I am not, so I never have any issues.  Still, this must be endured if you want to find out if you still have cancer or not.  The technician comes on over the speaker system every few minutes to tell you how much time you have left.  This is a nice way of letting you know it’s almost over and is very calming for some people.  Me, I usually end up dozing off anyway, so it doesn’t matter.

Before you know it, the scan is done.  You are encouraged to drink LOTS of water to eliminate the radioactive liquid and are warned to stay away from children and pregnant ladies for 12 hours.  The risk is low, but it is a risk nonetheless – you could harm someone with the isotopes in your blood.

After the scan, you get to go home and usually within 24-48 hours you can call your doctor or he calls you to tell you the results.  Now many people have asked me if these scans are dangerous.  Simply, the answer is yes, they are.  Ironically enough, these scans are radioactive and I run the risk of this radiation causing some kind of cancer in my body in the future.  That’s why they are only performed twice a year and then they taper off to once a year after two years.  I’m not sure comparatively how much radiation I am getting bombarded with, but any radiation is a risk – even the dental x-rays we all get from time to time.   The risk is worth it to me though.  I need to know as early as possible if I have a recurrence.

There are limits to the resolution of a CT/PET scan.  Cancer survivors need to be aware of this.  Typically, if a cancer malignancy is smaller than your little fingernail it will not get picked up by the scan.  This is why it is important to get scans every six months initially.  A cancer that was missed the first time because it was too small will show up on the next scan if it has grown.  This resolution limit is very frustrating for cancer survivors because it means that we’re never certain that we are cancer free.

That was my routine today.  If you are a cancer survivor or caregiver who was wondering about this routine, I hope you are now enlightened and aware of what cancer survivors, myself included, go through every six months.